Jonnas Journey

This is the Journey of Jonna Lil from 27 weeks thru Life. This site is for prematurity knowledge and more.

Wednesday, August 04, 2004

Mystery Mouth Item!

We are not on any ventilator for the first time since birth. No air tube between the vocal cords and she made her first sounds since her first minute in this air. Understand what I am saying....NO VENTILATOR!!

She has a newfound mouth experience called a "tongue". This mystery item is a fun item for her. She moves it over and out and up and out. She also can close her mouth, took her several hours to realize this but once she did, open..close...tongue...open...spit...bubble...spit...bubble....YAWN!!

Yes, yawn, something she could never do. This is a huge, huge, HUGE step in getting there. Now if we can get off the CPAP and/or VapoTherm(these provide extra oxygen in her nose), then we are finished and breathing normally.

She could be on extra oxygen for a week or two, but it is a whole lot better that she got off the ventilators within 4 weeks! WOW!

This is a big day. BIG day! I told her 2 weeks ago, when we went back on the oscillator, that her grandmother's birthdays(yes, the Grandma's have the EXACT same birthday) is on Aug 4th, and that she needed to get them a BIG gift like getting of the respirator completely.
She pulled her tube out this morning around 8:00AM. They were going to put her on VapoTherm when the unit came in, however, she checked her watch, saw what day it was, and being the good girl that she is and listens to her daddy, she said, I have to be off the vent for my grandmas!! Yep.

Every nurse and doctor who has dealt with her has commented on how strong she is. She turned her head, yes, lifted it and turned her head OVER today! 3 1/2 weeks old and turning her head. People, if I would not have seen it, I would not have believed it. She is amazing me now. I talk and tell her to do these things, but she is really following through. Wow.

Perfect.

Grandma and Grandpa saw her eyes today for the first time. Grandpa saw a big yawn and spit. They were very pleased also to see her cheeks and face for the first time. As I said, it was a huge day!

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