Jonnas Journey

This is the Journey of Jonna Lil from 27 weeks thru Life. This site is for prematurity knowledge and more.

Sunday, August 29, 2004

Weekend Update with Anchorman Daddy

I know, I know, I missed the Friday update. Absolutely nothing different happened and the eyes are still the main things until Monday. So keep those thoughts going. PLEASE keep those tiny tiny strings crossing the speed bumps going like the energizer bunny.

Yesterday she did really well, since we went back on the Zantac, we have had only one spit up, and our residual (the amount lingering in her belly during feeding) is down to nothing. Now let me try to explain a thought I had. For regular visitors here, and I thank you all, there are a TON of you and growing, keep telling your friends this is really good for when the foundation starts!!!!!
Ok, for regular visitors here, you know about two weeks ago we would go into full body grunts, turn our face purple and just use every muscle in some sort of anger. We do that again.

Now I examined what I saw....we were on Zantac two weeks ago, we were taken off, as you know, last Saturday. Our residuals during the period of no Zantac but more spitting up, was very high. Meaning she kept a full belly. Now back on Zantac we have no spitting up, and we have no residuals. SO I asked, could this reddish purple anger fit come from being HUNGRY??

Possibly. We have no idea, so they bumped her feedings up to 9CC's and hour to keep a full belly. The doctor's words exactly, "What can I say, she's a bottomless pit!”

I am stocking up on Cheerios and sliced cheese now.

I am still watching that hunger question, until she gets a little bigger and then we can go on what's called test feeds. This is where they give her 24 CC's in 30-45 minutes instead of three hours. This will give her the sensation of eating, fullness and hopefully a baby belly full sleepy time! She should start to grow on that action. That might be coming soon. Speaking of weight, we broke the 1200-gram barrier for the first time.

Jonna is now 2 lbs 10 ozs. Porker she is!!

Like I said please keep telling everyone about the site, it will be the premiere site for the foundation and be the first place to announce the foundation, it's kickoff dinner and so forth. We are in the legal forming stages, which mean paperwork on top of paperwork, but it is almost complete. We are going to educate this planet on prematurity.

And what a saga it is. I have been reading three books to pick one that the foundation will give away to new parents, and some of the stories I have read about preemies.....tragedy and hopeful. I promise you that while we are not out of the woods yet, we have had a moderate ride compared to some, and like I said, you have no idea until you have been here.

Congratulations on your new baby. Yes, we have one but everyday you wonder do we get to keep one? Think about that as a parent. There were days where we could have taken different directions with one being where we are and one being real real bad. Could I have been up for it? Could I be strong enough for her? Who am I to make decisions for this little little girl?

YES. I have made them, I have studied, I have questioned, and I have learned. I went in to make the best decisions for her because she is unable to speak. I look in her eyes and Jonna guides me on what she wants to do. From the beginning this little girl showed resilience. Some babies just lie there. Now we had some bad days where she wanted to just lie there, but not many. Daddy and mommy would then say ok girl, there is no quitting in this family. So she steps up and comes on with us. I can honestly say that up until this point we have made the decisions, we have watched over her, and we have guided the course to the best outcome at this time. It has all been one hell of a journey. Yet, it is still going on. Today is the beginning of week 8. We are close to 35 weeks.

Most moms are feeling the closeness of their birth now. 35 weeks inside the womb mostly is a viable birth with no complications and only days, if any, in a NICU. We have been at this for 8 weeks. Two months. Her due date was October 4th. 10/4 good buddy. We have at least that long to go. Right now they say November. I don't care what they say; I want her to come home when she is ready, whether it is November or three President's days later.

Wow. This morning has been a weird reflection on the journey. I am sorry that I wrote so much about things that didn't or have not happened yet, but when you read these books, you have to have some retrospect. You have to look at some of the things that some parents go through and go wow.

Please keep your thoughts up. I thank you so much. Get ready for the eye as the test is again tomorrow!!

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