Day 77, Pink Day
The blood she received makes her look very pink. Rare in her case so far.
She took the bottle very good, however, we were interrupted by the doctor's rounds. So she did not take in as much as she was going to, but she has it, it is just a case of getting stronger and able to suck for longer periods. The doctor is not worried about anything and is happy at her progress.
He then said the very bad words, "She might go home on a few months oxygen..."
Let's all get together and vote against that, shall we. Let's not even say that. While it will not be a problem, I really, really am ready to get that stuff out of her nose and off her face. I am hoping that when she gets big enough with her weight, she will come off that oxygen.
But we are ways off from that....easily another 30+ days.....easily. There will be leaps and bounds in these days and some backwards, but we will trudge along.
Very tired. Preparing the home for her, painting, and keeping up with her, visiting, making sure we are there for the bottle, driving, eating fast food, everything, just is making us tired. We will sleep good tonite.
Also, the paperwork for the foundation is in process, once we get this moving, I know I said this week, however, I cannot speed up the process. It should not be long and we will get it. The printing and website will be the first thing. We will have a kickoff and a press release. It should really be by next week.
This foundation is for real and more and more everyday, I know families need it. Big time.
She keeps up this current growth, she will be at the 4 lb mark by the end of the weekend or sooner.
She took the bottle very good, however, we were interrupted by the doctor's rounds. So she did not take in as much as she was going to, but she has it, it is just a case of getting stronger and able to suck for longer periods. The doctor is not worried about anything and is happy at her progress.
He then said the very bad words, "She might go home on a few months oxygen..."
Let's all get together and vote against that, shall we. Let's not even say that. While it will not be a problem, I really, really am ready to get that stuff out of her nose and off her face. I am hoping that when she gets big enough with her weight, she will come off that oxygen.
But we are ways off from that....easily another 30+ days.....easily. There will be leaps and bounds in these days and some backwards, but we will trudge along.
Very tired. Preparing the home for her, painting, and keeping up with her, visiting, making sure we are there for the bottle, driving, eating fast food, everything, just is making us tired. We will sleep good tonite.
Also, the paperwork for the foundation is in process, once we get this moving, I know I said this week, however, I cannot speed up the process. It should not be long and we will get it. The printing and website will be the first thing. We will have a kickoff and a press release. It should really be by next week.
This foundation is for real and more and more everyday, I know families need it. Big time.
She keeps up this current growth, she will be at the 4 lb mark by the end of the weekend or sooner.

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