Jonnas Journey

This is the Journey of Jonna Lil from 27 weeks thru Life. This site is for prematurity knowledge and more.

Monday, September 13, 2004

Eye Exam - The MOST IMPORTANT ONE!!

We are now 13 days removed from our surgery.

We have just now started eating back where we were, actually we are a little past where we were. We are off the vent and breathing very good on 1 liter flow.

Then there were the eye exams! One of our checks revealed nothing, we had redness and could not see enough or look at the retina because of cloudiness and vessels.

The next checkup last week, we could see where we were not detached yet, we had no retinal detachment, but we could not see enough to see any regression or ANY signs of better vascularity. We had to wait again.

So this checkup had to reveal something!!! Anything. Even if it was bad, we had to know, are we going back to surgery or are we moving forward preparing for growth.

I am pleased, no, ecstatic to report today's results. We finally could see that the iris vascularity has improved a good 80%. That allowed us to get a good glimpse of the retina, IF the cornea and fluid is clear, which they were.

The doctor looked for our ROP and was going to assess it, to see where it was going, forward or backward, worse or better......

...........she could not find any. "What?"

Right, she could not find any ROP, the disease has regressed 100%, it is completely gone!!!!!!!!!
I cannot tell you how happy I am today. She will see the sky, she will see her mother, she will see how to color, she will see how to draw, she will SEE!!!!!!!!

My worst fears past the obvious one has now passed. We are not going to need another eye surgery.

Now for the bad news. We don't need eye surgery AS OF RIGHT NOW.....there is always a possibility of more issues, but with this report, I can say that all research points to a good outcome. I am officially going to ask you to stop worrying about it. She may need glasses, but she can SEE!!!!!

The final phase of growth must now occur. We are nippling the bottles and took in 15 cc's today from the bottle. That is the most yet. The other phase of growth must give us good results to get off oxygen. We must get off the oxygen as soon as we can. That is vital.

SO back to our first thought.........balloons put them back in the forefront of your mind and do as good with that as we did with the speedbumps!!

Thank you everyone for your attention!

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