Sleepy Day...
Today was just a normal, no news day.
We went up on our feeds and tolerated that very well. By the end of today, we will be back to pre-surgery feeding. Our oxygen is about 27% on 2.5 liters. That is really good.
There is talk of her coming home on an oxygen tank. We are really discouraging that talk as much as possible. While I don't mind, I just want to make sure we continue the weaning process and growing process that could possibly send her lungs to working super.
If her gas this morning shows good, weaning will still be possible. While we don't want a setback, we do need to make her step up and act like a baby. (Mental note: wait many years, where I can see myself tell her, "Stop acting like a baby." and then remember that line and laugh at myself)
She just needs to continue to grow and see Mommy and Daddy and prepare to be a baby. That is the goal until this eye exam reveals something. All of this could be a setback if we need surgery again.
We went up on our feeds and tolerated that very well. By the end of today, we will be back to pre-surgery feeding. Our oxygen is about 27% on 2.5 liters. That is really good.
There is talk of her coming home on an oxygen tank. We are really discouraging that talk as much as possible. While I don't mind, I just want to make sure we continue the weaning process and growing process that could possibly send her lungs to working super.
If her gas this morning shows good, weaning will still be possible. While we don't want a setback, we do need to make her step up and act like a baby. (Mental note: wait many years, where I can see myself tell her, "Stop acting like a baby." and then remember that line and laugh at myself)
She just needs to continue to grow and see Mommy and Daddy and prepare to be a baby. That is the goal until this eye exam reveals something. All of this could be a setback if we need surgery again.
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