Weekend Update with Anchorman Daddy
We have had some issues with the blogger over the weekend, so that is why this is very very late.
Now, what has happened in the last two days....nothing except
WE GRADUATED TO SPECIAL CARE!
That means that for our next 8 weeks, we are now out of critical care and into the care of becoming more baby-like.
Our due date being 10/4 means Jonna is supposed to be getting to the point of birth, while admittedly she has had a harder road than a womb baby, she should be working on suckling, swallowing, and breathing while swallowing(seems like that would be instinctive, alas, another thing a preemie has to "learn" because her brains missed all that womb growth).
Yes, you don't breathe when you swallow, try it!! So actually preemies have to swallow and then remember to start breathing again. Sometimes they get caught up in the act of swallowing that they forget to breathe.
So our little 2 lb 15 oz butt has been transferred to special care in room 6. That should be our final spot with no more movements but home. So it should be a great day, but of course with change comes a little static. We now have to begin anew with new nurses, we now have a new corner to visit, things are different. BUT it is also postive because there are less alarms in special care, quieter, mostly darkened rooms. The nurses are a different breed than Critical care nurses and rightly so, they take care of the babies that have "made it". Critical care has to deal with all the issues that a preemie must being life with, breathing, heartrate, or just plain living! Once they are stable, life's automatic breathing and heartrate portion of the brain has matured enough to know that the chilc "should" be fine, it is time to start learning other baby skills.
I have to give my proper respect to critical care nurses right now. They are incredible. My foundation will create scholarships for these nurses and hopefully get more to help. Turnover is incredible, but these nurses have to know, that they create little bundles of joy for families. They make the impossible possible. Yes, they also see there fair share of tortuous pain. They have to deal with all the bad also. I would like to say this, that you cannot change the course that a child has chosen to take. As a nurse, you can only do what you can do, if a child does not or cannot make it, you cannot take it personally. I know it would be very hard on me with what we have been through, but I would, as I do now, feel that I made all the right moves and it just did not work. There would have to be peace in that.
Anyway, please have a little thought for the critical care nurses that have brought Jonna through and forward, carrying her little 1 lb 12 oz sack of sugar from womb to open warmer to isolette to open warmer to isolette, from oscillator to vent to oscillator to vent to cpap to vent to oscillator to vent to vapotherm to vent to vapotherm (wow), from 801 grams to 1359 grams, from 14 inches to 15 inches, from picture 1 to today's picture, and from the down and out to the alive and kicking. She has came forward and hopefully we are on the fast track.
Special care is going to nurture her, things are slower, life becomes more baby like. She has til 10/4 to realize that she is a baby and needs to be acting like one. Growth now begins in earnest. They will probably try in a few weeks to get her to start eating from a bottle, then nipple, she has to learn how to get there. A whole new realm of growth for us, there will be more holding, more touching, more interaction than ever before. It will be a very interesting time. I can't wait to give my special care reports.
Eye exam tomorrow morning. That is the most important thing in the WORLD right now.
Now, what has happened in the last two days....nothing except
WE GRADUATED TO SPECIAL CARE!
That means that for our next 8 weeks, we are now out of critical care and into the care of becoming more baby-like.
Our due date being 10/4 means Jonna is supposed to be getting to the point of birth, while admittedly she has had a harder road than a womb baby, she should be working on suckling, swallowing, and breathing while swallowing(seems like that would be instinctive, alas, another thing a preemie has to "learn" because her brains missed all that womb growth).
Yes, you don't breathe when you swallow, try it!! So actually preemies have to swallow and then remember to start breathing again. Sometimes they get caught up in the act of swallowing that they forget to breathe.
So our little 2 lb 15 oz butt has been transferred to special care in room 6. That should be our final spot with no more movements but home. So it should be a great day, but of course with change comes a little static. We now have to begin anew with new nurses, we now have a new corner to visit, things are different. BUT it is also postive because there are less alarms in special care, quieter, mostly darkened rooms. The nurses are a different breed than Critical care nurses and rightly so, they take care of the babies that have "made it". Critical care has to deal with all the issues that a preemie must being life with, breathing, heartrate, or just plain living! Once they are stable, life's automatic breathing and heartrate portion of the brain has matured enough to know that the chilc "should" be fine, it is time to start learning other baby skills.
I have to give my proper respect to critical care nurses right now. They are incredible. My foundation will create scholarships for these nurses and hopefully get more to help. Turnover is incredible, but these nurses have to know, that they create little bundles of joy for families. They make the impossible possible. Yes, they also see there fair share of tortuous pain. They have to deal with all the bad also. I would like to say this, that you cannot change the course that a child has chosen to take. As a nurse, you can only do what you can do, if a child does not or cannot make it, you cannot take it personally. I know it would be very hard on me with what we have been through, but I would, as I do now, feel that I made all the right moves and it just did not work. There would have to be peace in that.
Anyway, please have a little thought for the critical care nurses that have brought Jonna through and forward, carrying her little 1 lb 12 oz sack of sugar from womb to open warmer to isolette to open warmer to isolette, from oscillator to vent to oscillator to vent to cpap to vent to oscillator to vent to vapotherm to vent to vapotherm (wow), from 801 grams to 1359 grams, from 14 inches to 15 inches, from picture 1 to today's picture, and from the down and out to the alive and kicking. She has came forward and hopefully we are on the fast track.
Special care is going to nurture her, things are slower, life becomes more baby like. She has til 10/4 to realize that she is a baby and needs to be acting like one. Growth now begins in earnest. They will probably try in a few weeks to get her to start eating from a bottle, then nipple, she has to learn how to get there. A whole new realm of growth for us, there will be more holding, more touching, more interaction than ever before. It will be a very interesting time. I can't wait to give my special care reports.
Eye exam tomorrow morning. That is the most important thing in the WORLD right now.

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