Lots and Lots and Lots

Oh, the changes we made!!!

No feeding tube. No Aldactazide. No Reglan. Feed on demand. Meaning feed her as much as she wants when she wants.

What?

We can't get her to grow now....why in the world would we do something this insane.

To try it. Honestly, just to see.

It is possible the feeding tube kept her stomach sphincter open too much that she spit up OR it held it closed and she could not burp which in turn made her spit up. Don't know.

So I think that was a good thing to take away. Now can we get her to grow and not spit up on her being hungry? Can we get her to gain weight? All this and much more to come.

Now I told you that I had many questions and possible things to try that I asked the doctors about...and right now, I can not say enough about these doctors. I simply say WOW. These are some of the finest human beings. They listen, they understand, they are amazing. I am sure that I am way too much of a pain to them, but they still tolerate me enough to give some of the idiotic things I bring up a thought. They are absolutely superb. I honestly can't say enough.

Anyway, these are the things we are trying. Now Daddy went up and batted one, now my little girl has to catch it. Hopefully I won't make an out and have to hit again......